Approval from Lance!

September 20th, 2006

Live Strong

By sheer coincidence I just found out the Lance Armstrong Foundation has put a link on their website to my blog! As part of the Live Strong Day on May 17, I wrote a small post (here). They value this and show who ‘blogged against cancer’ by putting up a link. See here on their site.

This is what they wrote :
“Blog Against Cancer 

Hundreds were a part of LIVESTRONG Day by blogging against cancer on Wednesday, May 17. Blogs range from how cancer has affected lives and contain views about health policy issues facing cancer survivors. Each blog helps put a name and face to the more than 10 million cancer survivors in the United States.”

Live Strong!

BS06 Croatia

September 9th, 2006

A group of six five guys went to the pittoresque town of Trogir, on the splendid Croatian Coastline to have some fun. I was quite desperate for some holiday - it worked.

Fun
We enjoyed the food and drinks (and promoted SpelletjesOverzicht.nl).

Krka National Park
We enjoyed the wild life.

Cultural exhibition in Croatia
We enjoyed the wild life We visited cultural exhibitions.

Trogir
We enjoyed Trogir, close to Split.

Fire
And set it on fire.

Wim & Marjan

September 9th, 2006

Sanne’s mother Marjan and Wim married on July 11. It was an intimate and warm ceremony, with moving speeches afterwards over lunch and at their new home in Wassenaar. It is absolutely fantastic they have found each other. The picture underneath was taken in the garden of the church where they married - they used it on the cover of the invitation to their wedding party in August.

Died’s afstuderen

July 9th, 2006

Died graduated with a degree in Facility Management from the Haagse Hogeschool! Cheers Died BBA, we’ll drink to that!

 
Died signing his official degree certificate

Died's afstuderen 1 

Died and Eef with sunflowers from my parents… :D

Dutch Goverment hit the jackpot

July 6th, 2006

Rijkstraineeship

Sanne applied for the Rijkstrainee programme and got the job! Starting somewhere September she’ll work at the Ministry of Economic Affairs. The Rijkstrainee-programme is a 2-year programme involving job-rotations within the Ministry (or depending on your preferences, also at the Central Bank or posts overseas) and lots of formal training.

Congrats, Sanne! I’m so proud of you :D !

Hanneke

June 27th, 2006

Hanneke’s struggle is over. After spending four weeks in the hospice Voorburg she passed away this morning. She was a great aunt & godmother (”peettante”). She battled her disease with immense strength.

Here’s the most recent picture I have from her, when she joined in on a whole group of family and friends going out for stand-up comedy at Boom Chicago in Amsterdam last December. Hanneke had cancer and took chemo, but still joined the young crowd to go out (you see my dad in the picture ;)). That’s Hanneke for you.

Gorgeous Budapest

May 27th, 2006

And so the youngest of the Bernards Lab at the NCI left for a 4-day trip to Budapest! Budapest is gorgeous, the weather was great, the beer cheap. Don’t miss the thermal baths if you’re visiting.
Group-picture… Jeroen licking Armida’s leg!?

IMG_4671
Jasper and I

DSCF6035
Nice

DSCF6033
The Royal Palace in the background, us in a relatively ordered fashion in front.

DSCF6008
Ernst was so occupied with women… he lost his passport… and was lucky enough to get an emergency replacement on time.

Budapest_May2006 127
Jasper and Armida risked falling off a 20 meter cliff for this one.

Hee kijk daar

May 23rd, 2006

hoe gaat het nu met je
klote vraag kutantwoord
ga even zitten want
hoe weet ik dat?

conform de reisgids van
crisis naar crisis toe
hoort dit dan allemaal
ik ben het zat

May 17 = LIVESTRONG day

May 17th, 2006

Today is LIVESTRONG day.
Join us : wear yellow and live strong!

livestrongday Also see the Lance Armstrong Foundation

Recovery mail 9 : … Now what?

May 8th, 2006

Monday, May 8 2006

Dear Friends around the Globe,

Disaster has struck us, as I mailed you all right after Martijn died. It still feels totally unreal to me that my brother is not alive anymore - incomprehensible. Going through cancer-treatments, I already became very much aware how important your friends are for support. Once again, I’m getting much support from a lot of you. Thank you.

- Martijn
Martijn’s funeral ceremony was strikingly beautiful. So many of you were present, it was even hard to find an empty spot to stand in the back of the church and after the burial we were shacking hands of friends and family for way over two hours. Loads of emails and cards with lots of words or without any. It is comforting to feel so much sympathy and to see we were not the only ones shocked beyond belief. My mind is a big question-mark. Why? How can I not have seen this coming? Why didn’t he ask me for help? Did I fell short in love or support or anything else? Could I have helped prevent this?
Naturally these feelings dominate since, and I don’t know the best way to move forward. I stayed at home for some three weeks and then felt I needed some daily rhythm to hold onto and therefore went back to the laboratory (more on that later). I still have a hard time concentrating on scientific articles and stuff. I miss my brother.

Marga, Theo, Sanne and I left for 10 days of skiing in Italy - we definitely were in need of a break. There was grief, sadness and confusion, but also quite a lot of fun. It did us well. Sanne amazed us by learning how to ski within days, something perceived as important in this family :-). Quite an achievement as she had to deal with three instructors at every moment… My parents enjoyed taking a break so much, they actually just returned from their second ski-trip to Italy.

- Since last September…
Although it’s weird to mention in the same mail discussing my brother’s funeral ceremony, fortunately I can say my health is improving at an amazing pace since my last recovery-mail from September. Before last summer, it was too demanding for my body to engage in any sports. Now, however, it is just perfect. Doing sports some two, three times a week is really helping me rebuild my body and recover my strength. I play squash mostly with Died and play korfball in a team with lots of friends. We made it to champion in our low-level league, which we celebrated extensively (see weblog for pictures).
My body starts feeling better again, although the process of “resocializing”
is not easy.

- Cancer Research
As I wrote in my first recovery-mail, right before my diagnosis with cancer in Princeton I was looking for opportunities in the field of cancer research to do my next internship. I found this interesting laboratory of Prof. Rene Bernards at the Netherlands Cancer Institute / Antoni van Leeuwenhoek Hospital in Amsterdam. Now that I was recovering I decided, after quite some thought, that this is an amazing opportunity for me to contribute a little to cancer research after recovering from my own cancer. What could be more inspiring and satisfying?

So after I followed my first course again at Leiden University from October (which I aced :D), I attended an intense course in Experimental Oncology at the NCI during the whole of November. This was not always very comfortable as scientists talk quite differently about patients and survival and even my own cytostatica were discussed. The lecturers probably weren’t aware that during my treatments, only hearing the name of any of my chemotherapy-agents was often already enough to make me throw up ;-). Classes started at 9 am sharp in Amsterdam daily for 4 weeks - something I had not been accustomed to for at least one and a half years. I was very determined to attend every single class and have done so. Sanne was quite amazed I could keep it up and was proud of me (that felt good). A small victory.

So I talked to Prof. Rene Bernards and discussed opportunities for an internship with some of his group members. He accepted me and Jasper Mullenders is now supervising me - a 4th year graduate student who also graduated in Chemistry from Leiden university. He’s very personable, intelligent and hard working. I was only one week in the lab when Martijn died. Jasper worked with me and left it up to me to return to the lab and determine my own working hours after Martijn died. I’m very lucky with this grad student with social skills as direct supervisor.

- Sanne M.Sc.
Sanne graduated last December from the University of Amsterdam with a Master of Science degree in Econometrics! Sanne got lots of praise from Dr.
Tuinstra, who supervised her when she wrote her thesis on the influence of negative feelings among the electorate on election outcomes. She threw a huge party with her two roommates, who both graduated almost at the same time. The party was fan-tas-tic and held in a crowded house across the Ij in Amsterdam (great pics on my blog!). Can I get you anything, Master?

- Dutch Odyssey
I founded this company Dutch Odyssey on January 1 2006. The company sells the advertisement space on my websites. Maarten (programming), Died (mail management), Leung (design) and Clemens (accounting) all have helped me a little or more than a little with this endeavor. Time had come to do fun things you feel like, I thought, and in December I really felt like starting a small business.

- A full 120% Fertile!
More good news to end this email. Completely against my expectations, my doctors informed me I completely regained fertility! I was tested two weeks ago. They consider sperm-counts of over 20 million/ml to be normal, where mine is 59 million/ml. Motility is perfect at 59% of the cells, where everything above 40% is considered normal. And the movement ’speed’ of these motile cells is good as well. Wow, another sign my body is recovering well from the treatments…

More than enough content for one email. I hope you all are doing well.

Keep in touch!

Love, Rogier